They’re in a race to save their children’s lives. A newly approved drug has given them hope.

Like other children with Hunter syndrome, Cole is deficient in an enzyme required to break down certain molecules. Over time, toxins accumulate, and the genetic disorder ravages children’s organs, including their heart — and in many cases, their brain, leading to dementia-like symptoms. The condition, also called mucopolysaccharidosis type II, or MPS II, affects about … Read more

Trump fans at CPAC hope for the best in Iran but worry over the cost at home

At CPAC, various speakers and conferencegoers said that the better outcome in this war would be for the Iranian people to do the hard work of ousting the theocratic regime. So far, the popular uprising that Trump encouraged at the start of the war hasn’t happened. In one panel devoted to Iran, moderator Mercedes Schlapp, … Read more

They didn’t understand why their kids kept getting sick. After a rare diagnosis, a new gene therapy offered hope.

Ava Langenhop was always sick.  From “the time she was born,” she was “just a sick baby,” the 9-year-old’s mother, Alicia Langenhop, told CBS News. She’d catch any cough or cold. Before she was two months old, she went to the hospital twice for viral infections. Ear infections were constant. Scraped knees turned into skin … Read more

Parents see hope in back-to-back rulings that social media providers failed to protect young users

Walker Montgomery was just 16 when someone pretending to be a teenage girl messaged him through Instagram and seduced him into cybersex. Within hours he was dead. Caught up in a sextortion scheme, the Mississippi teen killed himself. —- EDITOR’S NOTE — This story includes discussion of suicide. If you or someone you know needs … Read more

Trump postpones deadline to strike Iranian power plants amid hope for peace deal

In the middle of the latest wave of the air strikes across Iran, there was a sudden about-face from President Trump, postponing for five days a deadline to “obliterate” Iran’s power plants in order to break the country’s siege on the Strait of Hormuz. Charlie D’Agata has the latest. Source link

Secretive deal leaves deportees from the US stuck in Equatorial Guinea with ‘no more hope’

DAKAR, Senegal — When a U.S. immigration judge told a 28-year old refugee from East Africa that he was free to leave detention in California after 13 months, he was overjoyed. Though an asylum request was denied, the judge ruled he could not be deported home because it would put him in danger. “He told … Read more

Mullin presents a different vision for FEMA, sparking cautious hope

President Donald Trump’s nominee to head the Department of Homeland Security presented a softer approach on federal emergency management in his Senate confirmation hearing, rejecting the idea of eliminating FEMA and pledging to undo some of his predecessor’s unpopular policies. The remarks by Markwayne Mullin on Wednesday raised hopes among disaster response managers that a … Read more